ButterflyLois

Amputee life before and after...

Sunday, February 10, 2013

~Calendars For You~



                                    

My good friend Susan lost her dad... We say
lost, but hes still there with her and she has
wonderful memories, so maybe passed on is
the best wording... I know how she feels, my
dad passed in '89...and I miss him to this day.

As these years have gone on, its been easier
to accept his absent from my life, but at
first it was so very hard.. My dad was such
a wonderful man and a huge influence on me
that I really didn't realize till now ... But he
made me the strong person I am, so did my
mom, they made me independent and taught
me that the very best person I KNOW I can
rely on is ME...

I remember when I found out my dad had
passed, I phoned home to tell them I would
be arriving earlier than expected it was
then my mother told me  "you don't have to
hurry now dear, daddy is gone".... The 6
hour ride home was awful... I was travelling
by bus from Buffalo  NY to Upper Michigan,
that was the longest ride of my life. It took
me 3 years before I could give away his things.
I wore his watch most of the time until I gave
it to my son....

We have snow, then we have snow, AND THEN
we have MORE snow... For the past week it has
snowed every day.. and the storm we just had
yesterday about snowed me in... I learned the
hard way about staying stocked up.. I keep
enuff food for the cats for 2 weeks, me I
always can find something and I have a nice
supply of groceries and I even have one of
those old hand turn can openers, Penny still
wants an electric one, but I have to much on
my counter now... :) and I just got a mail about
the outdoor solar lights will work indoors if
you need them so you don't have to worry
about batteries.. :)

I put a couple of my calendars up there for
y'all but specially for you Mary :)  Y'all stay
safe and warm, and this GORGEOUS
WEEBLE will be back soon...


Always, Lois ****






 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....



 

Monday, February 04, 2013

~New Arms?~

I saw a show on TV a few nights ago that has
stuck in my head.. The show was about a
soldier that came back a quad.. no arms or
legs. A man died, they cut off his arms and
attached them to the soldier.... AND he sat
there, moving the fingers and arms, he was
above elbow too!  He was doing great...

I couldn't help but watch him, they didn't
attach legs, which I think since they have
to carry so much weight a transplant wouldn't
work... maybe... This is just so interesting but
scarey.....

Pennys words when I told her were "This is
Frankenstein stuff!"  And it is really.. But then
things I remember when I was young that was
considered science fiction now are happening!
We can talk out of our shoes :) That show
Get Smart, all he did was made up, but not now.

I think this replacing body parts is wonderful,
If a heart transplant would work I would do my
best to try to get one, but it wont help me, all
my arteries and veins are useless and they cant
replace all those.. So no transplant for me... :(

We are having a massive snow storm. It has
been snowing here for 3 days... I bet we have
at least 6 to 8 inches if not more out there.
Penny said the roads are terrible, the snow
is coming down so hard the plows cant keep
up with the city streets let alone out in the
country... Carl plowed my driveway yesterday
but you cant tell today. Penny was here this
morning, cleared a path to the house and out
front, which Steve cleared yesterday.. By
the time Penny left 3 hours later, you could
not tell she had shoveled at all... Its SNOWIN,,
Ive not seen a storm this bad in awhile, plus
its so flippin cold! My furnace is steady
running , my bill for last month was almost 80
dollars so I can imagine what this one will be.

Well, I'm gonna go watch it snow, I sure wish
that kid good luck with those arms...This
GORGEOUS WEEBLE hasnt had lunch yet
either :) So.. y'all keep well and God Bless...

Always, Lois ****

 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....

Thursday, January 24, 2013

~Here I Am~ :)


I'm here! Boy, its been a rough few weeks,
I'll tell ya... These new meds have messed
up my system horribly which is causing me
to take yet ANOTHER pill! I'm taking 16
pills in the morning and 7 at night now... I
mean, how can all this be good? But I have
to admit, Ive not had any more of those
attacks since the big one, so that's a good
sign I think :)

I have a cold and feel fluy.. I ache and I
don't know how anyone could have a nose
as runny as mine , where is it coming from?
I saw a story on TV one of the talk shows,
and this woman said every time she put her
head down, her nose ran uncontrollably.. Put
it up and it was ok.. This went on for months
with her going from Dr to Dr and them saying
its just sinuses... well she found the right Dr,
Somehow she got a crack in her skull.. and the
fluid running out her nose was BRAIN FLUID!
Can you believe that? How could she not know
she got hit in the head? To make a crack it
would have had to be a hard one.. but that's
what I saw on TV.. amazing...

It is SUPER cold, right now as I write this it is
about 7 with a below zero wind chill factor... We
have about 4 or 5 inches of snow Id say... Even
the schools have been closed because of the
cold.. Part of one county lost power for 4 days.
My furnace is just steady running.. I closed all
my blinds to keep the warm in... but I still can
feel a draft by the doors...Aluminum screen
doors arent good cold keeper outers :)

Its lunch and I need to eat something so I
can go and take a nap... They put me on
zanax to keep me calm and help me sleep...
Ya, right, they don't work... I'm awake
just about hourly lately I just cant sleep..
Lots of things are falling apart, my printer,
speakers, I broke a lamp... so I guess Ive got
too much on my mind which worries me..
I'm still a GORGEOUS WEEBLE though :)
and I shall try to do better in writing...
Y'all stay warm ,

Always, Lois ****


 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....

Monday, December 31, 2012

~Im Happy!~


My chair was fixed this morning.. A guy named Matt
was here about 10, he came from Lansing, a LONG
drive. It took him not even a half hour to replace
the joystick and batteries. I had to let it charge
for a few hours but I'm back in my chair :) I'm
happy :)  NOW....

Guess what this cost? I almost fell out of my chair!
2 batteries at $165.oo EACH.. which is $330.oo,
1 joystick at $725.oo, and $40.oo labor.. Can you
believe this cost? the total bill is $1095.oo...
I said "Thank GOD, I don't have to pay this"... I
wouldn't have been able to afford to pay for it
myself... I have many blessings, I m just SO glad
to have it back.. I appreciated having my manual,
but I didn't move hardly at all...just too much..

Well maybe this is a good sign, getting this fixed
for the new year.. I hope so, I always get a little
down when its my birthday, not cuz I'm starting
off a year older, but my sister Mary Jane died
on my birthday 8 years ago...

I wish you all the very best for the new year..This
GORGEOUS WEEBLE will be asleep.. :) Keep well
and God Bless...

Always, Lois ****


 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....

Sunday, December 30, 2012

~Happy New Year!~


I hope this new year is going to be a good one, I
bet every person in this country hopes conditions
improve... This past year wasn't too awful, the
way its closing out is not good but hey, I made it
all the way thru another year... For me that is THE
best thing... NOW..... I need to remind  y'all, January
20th is MORE than inauguration day you know.. it
is also this GORGEOUS WEEBLE'S BIRTHDAY!!!
the paypal thingie is right over there >>>>>>>>>>>>> :)

Update on this chair drama... I got out of hospital on
the 13th.. Wright Philipis phoned on the 12th to tell
me the repair guy couldn't come on the 20th.. They
didn't bother to keep trying till they reached me
so the 20th, I'm up ALL day, waiting.. the next day
I called to ask WTH... She told me the repair guy
has a sick mom in Florida, he had to go... apparently
he is the ONLY repair guy... so they said they could
send someone out JAN 2!!!  I had to agree...

This past Wednesday, I was going to bed and by now
I had to use a pen to stick in the hole to shut my chair
off.. It refused to shut off, so this chair has been on
since Wednesday morning... I had just fully charged
the batteries Tuesday, thank GOD! So yesterday I
see the power bar, that shows when its running low,
I had 2 yellow and 2 red left... this worried me cuz
its been acting up so badly... SO..

I get online yesterday to see if I can find out whether
I can charge the batteries with the chair on... I found
lots of sites, my chair is a Quickie, some said no, some
said go ahead... SO... I plugged in the charger when my
chair was on... SO... know what THAT did? The power
bar started going full charge , blink then show charging
again, over and over, I unplugged the charger, it STILL
is blinking... SO

I call Wright Filipis, a guy called me back, he had NO
idea what to do, he said undo the batteries... Know where
they are?? WAY down in back by the bottom of the chair!
Like I can reach that.. So as of right now, my chair is in the
bedroom blinking... and I'm having to use my manual which with
this carpet this is NOT easy.. I only move if its urgent, like
a potty break, that's it... By the time I get all the way down
to the kitchen not only my arms ache but so does my chest!

The work of this company is awful...but they are the ONLY
repair place that will repair my chair.. I am eligible for a
new one, but since I'm on Hospice and considered on my
death bed, the govt. wont let me have one, said it would
be a waste since I'm dying.. Well FOO! Arent we ALL
dying? So I have to go thru all this with this chair and
risk my life you might as well say, I cannot have another
attack like the last, if I do, then this GORGEOUS WEEBLE
fat lady has sung her last tune :)

SO.. tomorrow the repair guy promised someone would
be here, watch, they wont come till 5 oclock... I don't
care as long as they fix that chair... Anyhoway, thanks
to everyone for the cards and letters and prayers, and
Bev, my honeygirl...thanks thanks.. :) Y'all keep well and

God Bless,
Always, Lois ****

 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....


Sunday, December 23, 2012

~Merry Christmas~


 
Another year almost gone.. and what a year this
has been... came in mild I remember but boy its
sure goin out with a BANG! for me hey? :)

Lots of new info but I want to wish all of you a
very     .
I hope Santa is good to you...

The new info about this last 'episode' in all the
ButterflyLois drama... It most definitely was a
massive heart attack. I'm on 4 new pills, 3 as in
THREE are blood thinners.. 1 is to regulate my
heartbeat, amiodarone. They give you papers
to read about what your're taking, and the very
first sentence, and I quote "this medication is
only to be given in life threatening situations".
That was comforting..  scared me, THEN it said
not to take with Plavix, and one other med I take.
I'm up to 16 pills in the morning, and 5 at night.
I hate taking pills, BUT if I miss a dose I could
trigger another attack from that...

THIS heart attack was caused because my blood
level had dropped so drastically, I got 2 pints of
blood.. Well a heart is like a car, no oil, she don't
run! That's how it is with a heart too... The heart
specialist that talked to me was the same one from
2 years ago that gave me less than a year.. He even
remembered me~!!!  I reminded him of what he said,
and that I was a year past my deadline, would you
believe he denied telling me that? I cant believe
he would think Id make something like that up so
I could be depressed every day for these past 2
days with that CRAP hanging over my head.. He
again denied it but I told him anyway about saying
that .. I honestly hope he doesn't say that EVER..
SO.. my heart is very damaged... It cannot be fixed.
Not even a heart transplant would work, cuz I kept
that thought in my head, wondering. Apparently the
veins and the arteries are damaged they wouldn't
handle a new heart... so they gave me these new
meds and hope that will give me another 20 years :)

I'm STILL waiting for the chair repair... person... He
was sposta be here the 20th, Thursday to fix my joy
stick and put new batteries.. I waited ALL day for him.
He didn't show up, no call, nothing... I called Wright &
Philipis and asked "whats up doc?"  Well apparently they
called here the day before I got home from hospital &
of course got no answer, they called to tell me the guy
wasn't coming.. they didn't bother to try to REALLY reach
me... SO NOW, I have to wait till JAN. 2nd for him to come
and do this chair.. I hope it can make it that long.. It shuts
off and on when ever it wants, sometimes I have to stab
that little hole with a pen 50 times for it to turn on, THEN
if I hit that the wrong way it BEEPS and STILL wont MOVE!,
So , its more jabbing to shut it off then back on... This is so
aggravating, and Ill tell ya zanax aint calming me down too
very good with this huge STRESSER!!

We got not one bit of that snow storm.. Ive not heard
if Kelly made it to Wisconsin ok... This GORGEOUS
WEEBLE is gonna watch my boys, THE PACKERS
WIN AGAIN!!! lol... GO PACK !
Y'all have a merry Christmas, Happy new year too!
Ill try to be back before then ... I'm very restricted
as to what I can do, you'd think I was sick or something..

Always, Lois ****

 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....


Friday, December 14, 2012

~Im Back~

I am back home after one of scareyist times ive
ever gone thru... I woke Thursday morning and I
sat on my bed thinking, "hmmm I feel good today".
Id been having attacks almost daily for weeks...
So when I woke up and nothing hurt and I wasn't
throwing up, I'm happy!!!

I got to my computer, reached to turn it on and
it hit so fast and violently and grew steadily worse.
I had no choice but to hit my button, my phone rang,
All I could say was "help me"... and that's the last I
remember till being tossed around in the ambulance
going 800 miles an hour down the road and with 2
people , one on each side stabbing my arms to try to
get an IV in.. I had no pulse and they couldn't get a
blood pressure, the stuck my finger and there was
no blood....

I remember being rolled into the ER in Sturgis...and
seeing dozens of people around me, this little lady
came pushing thru and cut my clothes off my body,
I laid there naked, while they stabbed my arms
more to get an IV they got the blood and found I
was 2 pints low and my sugar, which I'm NOT diabetic
was at 387.. They got me stable until they could transport
me to Borgess... If I hadnt responded as well they were
going to take me by helicopter..

So, I'm in Borgess, and, well its not the best hospital
in the world.. They did a scope and found a big
ulcer and THOUGHT that's where the bleed was
from...my blood count was stable when I left.. They
decided to do an echo of my heart because I am too
high risk for a heart cath,  my heart is at 32%...

They put me on 4 new pills to try to control my heart,
they couldn't do a pace maker as my veins and arteries
are too bad.. so I have a new med to control that and I'm
on some special stuff to heal the ulcer..

I say "Thank you LORD, IM HOME!"... My cats have cried
since I rolled in the door and they have not left my side
since.. I have both up here on my desk now while I write
this.... Penny said they cried the whole time.. when she
walked thru the door every day to feed them they
would start to whine and kept on till she assured them
mom WILL be home!.. LB stayed in the closet up high
on the shelf and Dutch wouldn't budge from my chair..
My boys love me...

So anyhoway, I'm back but very limited and I cannot
have any stress at ALL!  Thanks to everyone for the
get well wishes and cards and phone calls.. they mean
a lot to me

Ill be back soon as I can  :)
Keep well, God Bless...

Always, Lois

 
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