~More Chair Crap!~ :-(
A man, I forgot his name, called me from Wright Filippis and I hung
 up on him.  I told him exactly what I have been saying since day 1 of
 all this...and now after I went round n round with this new guy as  to
 why the 6 wheels are necessary for stability. I will do without a  chair
 raising up.. I cant have the tires in front, it has to be flat.. Then  that
 Scott that was here, told me it was standard that all power chairs
 had the joy stick on the left- which is NOT true. I must have  talked
 to him for the better part of an hour and he more or less said I  would
 have to go back to the Dr. again to get verification of my disability
 if that paperwork was over 45 days old.. THAT was when I told him 
 to forget about this chair and to shove it..and hung up..I then  called
 my insurance lady and told her all this moronic company is doing 
 and still NO CHAIR..and that I think they just need to find another 
 company.. I refuse to keep going thru this.. Enough is enough.. I
wont keep banging my head on this brick wall...I already got the
 wont keep banging my head on this brick wall...I already got the
headache..I want it gone... Deborah at my insurance said she will
 try to find out what is going on.. I had her look to make sure they
 did NOT pay for that chair, as I refused to accept it... People that
 don't spend every waking hour in a chair, really have not the vaguest
 idea of what it is really like...
 A person messaged me on yahoo  and I replied.. one of the remarks
 made after the basic hello's..he made the comment.." you have it  made,
 you get to sit all day, I have to stand at work"  You KNOW what I  said..
 :-)..  "YOU CAN STAND? AND compLAIN?  I sit a lot longer than the 8
 hours spent at a job.. from eyes open to eyes shut..that is a very  long
 time...Everything I do I have to be able to do it from this chair. I  get
 really indignant with some of these people with these agencies that
 "Assume" to know how hard something is OR what it feels like to have
 to ASK for help constantly...they have no idea.. One woman at a home
 care agency MStaff, said to me she saw "no reason I could not SCOOT
 across and get in to a careproviders vehicle"  She has NO idea what 
 its like  and when she said that to me..well I got very mad and told  her
 just what I thought..  Untill you have actually DONE something how  can
 you be an authority on a subject and know first hand?  This lady made
 me very mad... SHE saw no reason..well SHE wasn't the one doing
 it...I do NOT employ their home aides. Some of the people over at 
 the COA here have that same mentality as the woman from MStaff
 and I have gotten into it with them. Like the lady that said to me  when
 I was in the homeless shelter "arent you glad to be in such a nice 
 place?"  No, I wasn't glad.. I didn't want to be there I don't care if  it
 was  a castle.. I was grateful..and I appreciated what they did do 
 for me, but glad? no  I was NOT glad... She had NO  idea what I
 felt..all she saw was the new building and the squeaky clean
 areas inside.. I appreciated I had a place to lay my head,, but I
 was far from glad.. I think that is one time I hope I never go thru
 again.. I felt totally worthless, and useless as well..That was one
 of the LOWEST points of my life, even more than when I became
 an amputee...that was worse...
 Penny came today and went to the grocery store and got me some
 blueberry muffins.. I havent had one YET..She goes down to the
 gas station on the corner and they have these things I call ICEE's
 its slushy ice and its flavored..very good..When I have a thirst I
 cant seem to quench these do the trick... I usually cant drink ice
 cold drinks as I have a hiatial hernia and ice cold stuff can close
 my throat tighter than a cork! I have to drink them slowly but they
 are so good.. I think Burger King has them too but they just
 changed the flavor and I don't like it at all.. I did try the other  week
 some of those cini mini's from McD's..now..those are very good.
 and it doesn't look like you get alot..but there are a lot of those
 little mini buns in those bowls.. So easy to make..all it is  are 
 those cheapie biscuits cut in 3 and then put in that plastic bowl
 with butter and cinnamon and sugar on them.. Easy to make..
 and very good.. But McD's cini's are really good..
 I need more closet space that's all there is to it.. I would like  some
 kind of amoire or wardrobe that had 2 rods for hanging clothes 
 on them.. I don't have to hang the clothes UP, I just have to be 
 able to get them OFF the hangars..Penny hangs them up.. I saw
 where they have these things that hook onto the higher rod and
 then extends down farther for a 2nd lower rod.. doubling your
 hanging space..which for me is good I don't have anything that
 is full length like a dress..well I do have a couple loungers..but
 they can be folded in half over a hanger.. Penny told me today
 that I need more plastic hangers AGAIN!! I have NO idea where
 they have all gone.. I bet I have bought   8 dozen hangers.. I know
 I have a lot of clothes..but well.. everything at one time had one..
 NOW they all dont..and Ive not gotten anything new since the
 apartment except 2 skirts and a sweater from the shelter..so
 where'd the hangers disappear to.. I think its the same for 
 hangers as it is for socks.. don't know where its disappeared
 to..where'd they go? I know my drier ate mine :-)
 I have some HOMEMADE bread cooking in my bread machine.
 I hope it works ok..Ruth was the last one to use it and we cant
 find the manuals to it.. I need to get a filing cabinet to keep these
 kinds of things in one place.. I am NOT organized..I have stuff
 everywhere and I think a filing cabinet would fit perfect right
 here next to my Desk and my 3 in 1 could fit right on top. Its on
 an old typewriter table with the drop leaf sides..push the bar
 thingie and the wheels go up and it wont move.. I used it when
 I was in the hellhome to keep my sewing machine on it..Was
 great for that and its fine for this..but all that space under neath
 is wasted where a filing cabinet I could file stuff right and then
 I bet I could actually find something im looking for right  away.
Sometimes I never CAN find what im looking for its so bad :-)
 Sometimes I never CAN find what im looking for its so bad :-)
Its here somewhere ..but where..well its always in the last place
 you look anyway...
 My bread is almost done..its cinnamon raisen..I KNOW it will be
 so good..I havent had this in ages...Dawn has one and she does
 hers from scratch.. I use a mix.. I KNOW its better from scratch
 but well.. this is easy..  We found ants in the cat food.. Penny
 did this morning when she was sweeping.. They only go after
 the moist food not the dry..but when I put the dish in a pan of
 water, the ants don't know how to swim or something..but I
 don't have them anymore...So we found a dish and now the
 boys food is in water again..just like I did over at the apt.. It
 worked there... I wonder if its true ..ants cant swim?  hmmm..
 I say NO they cant.. or maybe they figgure if they drag food
 thru water they will drown.. I bet someone has done a study
 on this and made a fortune  :-)
 Well its that time again and I am tired.. I bet I woke up a dozen
 times last nite..that spot on my back butt spot..end of my 
 tailbone.. That spot gets to hurting I cant stand it.. I don't know
 if its just me..or this new bed...its not an open soreness..It
 feels like my tail bone is pushing thru the skin. I dunno but
 it sure can quit.. Its ok if I sit up..then move a bit to my side..
 then lay back down so I am not laying flat on my back... Just
 to move I have to sit up first then scoot to where I want to be.
 By then I am wide awake... And I do not sleep good then..
 So Wed. nite is pretty good tv..medium I think is on and I do
 like that show.. Lost is too but Im lost in it myself.. I Have NO
 idea what is what there now..Time for bread, time for bed,
 time to say "Nitey Nite"
 Y'all have a good one now Y'hear? love ya, and thanks :-)
 ALways, Lois****
 God Bless you is my prayer today,
 I'm so honored to call you "friend";
 I pray the Lord will keep you safe
 until I write again..



 
5 Comments:
At 9:17 PM, momar said…
 momar said…
Considering that you do not go out much - you really keep busy. Today I went to Lowes, Marks, Paints by George - a benjamin moore dealer, Bergen tile - my bank and my vacuum cleaner dealer - wow that is a lot of interaction with people - no wonder I get tired by 8pm. I get up at 7-7:30 and go on line about 8 or 9 - I am entitled to get tired
At 10:28 PM, Anonymous said…
 Anonymous said…
Lois
Give'em hell girl. No one other than you knows what its like to be in that chair 24/7. Keep setting those idiots straight, Lois.
At 11:18 PM, Anonymous said…
 Anonymous said…
Hello Lois I use to have have lot of closet in this house, more then I needed...but after 35 years in the same house they are full and over running...the problem is I really want to keep most of it...
So sorry you are having a hard time getting the right wheelchair...how come you can't go to the place where they sale them and pick out the one that is right for you...They should have all kind to try out there on the floor... then they could order the right one for you...
Getting a good wheelchair is hard work...
God bless you Lois.
Mary
At 6:20 AM, Anonymous said…
 Anonymous said…
Hi, Honey,
You know, one of the rarest attributes in people is what is called"common sense" - it is VERY uncommon!! So is just a smidge of imagination. If only these minions would engage brain (Assuming they have one, and not just fluff, like Pooh Bear)before operating mouth, life would be SO much easier for you.
I can just about smell that lovely bread from here!! There is nothing quite like the smell of freshly baked bread. We cook ours on the timer, overnight and wake up to this gorgeous aroma!! And then, a fresh crust with lots of butter spread on it - OOOOH, YUMMIE!!!!
How can a guy keep his weight down? It's very difficult!! Don't eat too much of that lovely bread, it shrinks chairs!!! LOL ;o)
Take care, Honey - remember - N.I.C. (see my last post!!) Lots Of Love & Great Big Hugs from
Raife
At 7:09 PM, Lois said…
 Lois said…
Hi Momar, I keep busy on the computer or on the phone..thats about all Momar..you GO out..Yes you should be totally pooped out.. :-)
Hi Anonymous. This is NOT over..I wont quit.. Im NOT a quitter specially if Im right :-) thanks ..
Hi Mary,
Im a major pack rat and save everything and shouldnt.. I will get this chair stuff straight or there wont be a chair.
Hi Raife,I like how no one wants to take the blame. Robert says I should get an attorney..Ive thought about that myself.. this is such crap.. My bread was great.. The smell was wonderful.
So nice to hear from y'all hope you had a good day.. :-)
Always, Lois ****
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