ButterflyLois

Amputee life before and after...

Monday, December 31, 2012

~Im Happy!~


My chair was fixed this morning.. A guy named Matt
was here about 10, he came from Lansing, a LONG
drive. It took him not even a half hour to replace
the joystick and batteries. I had to let it charge
for a few hours but I'm back in my chair :) I'm
happy :)  NOW....

Guess what this cost? I almost fell out of my chair!
2 batteries at $165.oo EACH.. which is $330.oo,
1 joystick at $725.oo, and $40.oo labor.. Can you
believe this cost? the total bill is $1095.oo...
I said "Thank GOD, I don't have to pay this"... I
wouldn't have been able to afford to pay for it
myself... I have many blessings, I m just SO glad
to have it back.. I appreciated having my manual,
but I didn't move hardly at all...just too much..

Well maybe this is a good sign, getting this fixed
for the new year.. I hope so, I always get a little
down when its my birthday, not cuz I'm starting
off a year older, but my sister Mary Jane died
on my birthday 8 years ago...

I wish you all the very best for the new year..This
GORGEOUS WEEBLE will be asleep.. :) Keep well
and God Bless...

Always, Lois ****


 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....

Sunday, December 30, 2012

~Happy New Year!~


I hope this new year is going to be a good one, I
bet every person in this country hopes conditions
improve... This past year wasn't too awful, the
way its closing out is not good but hey, I made it
all the way thru another year... For me that is THE
best thing... NOW..... I need to remind  y'all, January
20th is MORE than inauguration day you know.. it
is also this GORGEOUS WEEBLE'S BIRTHDAY!!!
the paypal thingie is right over there >>>>>>>>>>>>> :)

Update on this chair drama... I got out of hospital on
the 13th.. Wright Philipis phoned on the 12th to tell
me the repair guy couldn't come on the 20th.. They
didn't bother to keep trying till they reached me
so the 20th, I'm up ALL day, waiting.. the next day
I called to ask WTH... She told me the repair guy
has a sick mom in Florida, he had to go... apparently
he is the ONLY repair guy... so they said they could
send someone out JAN 2!!!  I had to agree...

This past Wednesday, I was going to bed and by now
I had to use a pen to stick in the hole to shut my chair
off.. It refused to shut off, so this chair has been on
since Wednesday morning... I had just fully charged
the batteries Tuesday, thank GOD! So yesterday I
see the power bar, that shows when its running low,
I had 2 yellow and 2 red left... this worried me cuz
its been acting up so badly... SO..

I get online yesterday to see if I can find out whether
I can charge the batteries with the chair on... I found
lots of sites, my chair is a Quickie, some said no, some
said go ahead... SO... I plugged in the charger when my
chair was on... SO... know what THAT did? The power
bar started going full charge , blink then show charging
again, over and over, I unplugged the charger, it STILL
is blinking... SO

I call Wright Filipis, a guy called me back, he had NO
idea what to do, he said undo the batteries... Know where
they are?? WAY down in back by the bottom of the chair!
Like I can reach that.. So as of right now, my chair is in the
bedroom blinking... and I'm having to use my manual which with
this carpet this is NOT easy.. I only move if its urgent, like
a potty break, that's it... By the time I get all the way down
to the kitchen not only my arms ache but so does my chest!

The work of this company is awful...but they are the ONLY
repair place that will repair my chair.. I am eligible for a
new one, but since I'm on Hospice and considered on my
death bed, the govt. wont let me have one, said it would
be a waste since I'm dying.. Well FOO! Arent we ALL
dying? So I have to go thru all this with this chair and
risk my life you might as well say, I cannot have another
attack like the last, if I do, then this GORGEOUS WEEBLE
fat lady has sung her last tune :)

SO.. tomorrow the repair guy promised someone would
be here, watch, they wont come till 5 oclock... I don't
care as long as they fix that chair... Anyhoway, thanks
to everyone for the cards and letters and prayers, and
Bev, my honeygirl...thanks thanks.. :) Y'all keep well and

God Bless,
Always, Lois ****

 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....


Sunday, December 23, 2012

~Merry Christmas~


 
Another year almost gone.. and what a year this
has been... came in mild I remember but boy its
sure goin out with a BANG! for me hey? :)

Lots of new info but I want to wish all of you a
very     .
I hope Santa is good to you...

The new info about this last 'episode' in all the
ButterflyLois drama... It most definitely was a
massive heart attack. I'm on 4 new pills, 3 as in
THREE are blood thinners.. 1 is to regulate my
heartbeat, amiodarone. They give you papers
to read about what your're taking, and the very
first sentence, and I quote "this medication is
only to be given in life threatening situations".
That was comforting..  scared me, THEN it said
not to take with Plavix, and one other med I take.
I'm up to 16 pills in the morning, and 5 at night.
I hate taking pills, BUT if I miss a dose I could
trigger another attack from that...

THIS heart attack was caused because my blood
level had dropped so drastically, I got 2 pints of
blood.. Well a heart is like a car, no oil, she don't
run! That's how it is with a heart too... The heart
specialist that talked to me was the same one from
2 years ago that gave me less than a year.. He even
remembered me~!!!  I reminded him of what he said,
and that I was a year past my deadline, would you
believe he denied telling me that? I cant believe
he would think Id make something like that up so
I could be depressed every day for these past 2
days with that CRAP hanging over my head.. He
again denied it but I told him anyway about saying
that .. I honestly hope he doesn't say that EVER..
SO.. my heart is very damaged... It cannot be fixed.
Not even a heart transplant would work, cuz I kept
that thought in my head, wondering. Apparently the
veins and the arteries are damaged they wouldn't
handle a new heart... so they gave me these new
meds and hope that will give me another 20 years :)

I'm STILL waiting for the chair repair... person... He
was sposta be here the 20th, Thursday to fix my joy
stick and put new batteries.. I waited ALL day for him.
He didn't show up, no call, nothing... I called Wright &
Philipis and asked "whats up doc?"  Well apparently they
called here the day before I got home from hospital &
of course got no answer, they called to tell me the guy
wasn't coming.. they didn't bother to try to REALLY reach
me... SO NOW, I have to wait till JAN. 2nd for him to come
and do this chair.. I hope it can make it that long.. It shuts
off and on when ever it wants, sometimes I have to stab
that little hole with a pen 50 times for it to turn on, THEN
if I hit that the wrong way it BEEPS and STILL wont MOVE!,
So , its more jabbing to shut it off then back on... This is so
aggravating, and Ill tell ya zanax aint calming me down too
very good with this huge STRESSER!!

We got not one bit of that snow storm.. Ive not heard
if Kelly made it to Wisconsin ok... This GORGEOUS
WEEBLE is gonna watch my boys, THE PACKERS
WIN AGAIN!!! lol... GO PACK !
Y'all have a merry Christmas, Happy new year too!
Ill try to be back before then ... I'm very restricted
as to what I can do, you'd think I was sick or something..

Always, Lois ****

 



   "God Bless You", is my prayer today,
  I'm so honored to call you "friend"
  I pray the Lord will keep you safe,
      until I write again.....


Friday, December 14, 2012

~Im Back~

I am back home after one of scareyist times ive
ever gone thru... I woke Thursday morning and I
sat on my bed thinking, "hmmm I feel good today".
Id been having attacks almost daily for weeks...
So when I woke up and nothing hurt and I wasn't
throwing up, I'm happy!!!

I got to my computer, reached to turn it on and
it hit so fast and violently and grew steadily worse.
I had no choice but to hit my button, my phone rang,
All I could say was "help me"... and that's the last I
remember till being tossed around in the ambulance
going 800 miles an hour down the road and with 2
people , one on each side stabbing my arms to try to
get an IV in.. I had no pulse and they couldn't get a
blood pressure, the stuck my finger and there was
no blood....

I remember being rolled into the ER in Sturgis...and
seeing dozens of people around me, this little lady
came pushing thru and cut my clothes off my body,
I laid there naked, while they stabbed my arms
more to get an IV they got the blood and found I
was 2 pints low and my sugar, which I'm NOT diabetic
was at 387.. They got me stable until they could transport
me to Borgess... If I hadnt responded as well they were
going to take me by helicopter..

So, I'm in Borgess, and, well its not the best hospital
in the world.. They did a scope and found a big
ulcer and THOUGHT that's where the bleed was
from...my blood count was stable when I left.. They
decided to do an echo of my heart because I am too
high risk for a heart cath,  my heart is at 32%...

They put me on 4 new pills to try to control my heart,
they couldn't do a pace maker as my veins and arteries
are too bad.. so I have a new med to control that and I'm
on some special stuff to heal the ulcer..

I say "Thank you LORD, IM HOME!"... My cats have cried
since I rolled in the door and they have not left my side
since.. I have both up here on my desk now while I write
this.... Penny said they cried the whole time.. when she
walked thru the door every day to feed them they
would start to whine and kept on till she assured them
mom WILL be home!.. LB stayed in the closet up high
on the shelf and Dutch wouldn't budge from my chair..
My boys love me...

So anyhoway, I'm back but very limited and I cannot
have any stress at ALL!  Thanks to everyone for the
get well wishes and cards and phone calls.. they mean
a lot to me

Ill be back soon as I can  :)
Keep well, God Bless...

Always, Lois

Thursday, December 06, 2012

Hello everyone

This is Aunt Lois's neice and I wanted to let you know that Aunt Lois had a massive heart attack today.  As of right now, she is stable and is talking.  We will know more tomorrow as they are going to do more tests on her.

My phone number is 616-901-2880 if anyone has any questions.

Beverly
 
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